Friday, March 23, 2012

Baby #2, and our biggest trial yet.

We are expecting baby #2.
Unfortunately along with this exciting announcement comes some bad news too. It'll probably be best if I just explain how things have happened. Bear with me if you want to read the whole story...it's a long one, but it'll help you understand a lot of what may be going up on our blog over the next few months and what our family will be going through. We're going to need all the love, support, and prayers we can get.

We went in for our first prenatal appointment on Monday, March 12. I hit the 13 week mark the next day. At that first appointment my doctor said my uterus was measuring higher than a 13 week uterus...more like a 15-16 week uterus. She checked for the baby's heartbeat (which was good and strong), and then pulled out an ultrasound machine just to make sure there weren't two babies! That sure made our hearts jump! She could only see one baby (and the baby was even sucking its thumb at one point, so cute), but she still wanted us to have an official ultrasound that week to check the baby's measurements and make sure my due date of September 18th was correct. On Tuesday I scheduled the ultrasound for Friday.

Darwin had Friday off and we were SO excited to go in for this ultrasound and see our teeny little baby again. Aurora was adorable during the ultrasound--she could tell it was the baby on the screen and she'd point at the screen and sign "baby" (which is by far her most favorite sign she knows now...she signs it ALL the time!). It was so precious. She loves this baby just as much as we do already! So...during the ultrasound I could see that the ultrasound tech was measuring what looked like a pocket of fluid somewhere on the baby. I asked what she was measuring and she said she thought it may have been the yolk sack (looking back now, I think she was just trying to be safe with her answer). After she took more measurements she said she wanted the radiologist to come in and look at the baby too. The radiologist came back in with the tech and they took a whole bunch more measurements. It made me a little bit nervous when he had her check and double check to make sure all of the baby's limbs were there, but I was trying to not freak out at this point, even though I could tell something was not quite right. When they were done, the radiologist said our baby had some "thickening" on the back of the head and neck and that the baby's chest and abdomen were measuring larger than they should be. He said he was going to write up the report right away, send it up to my doctor, and that my doctor would probably want to talk to us immediately about the results. We were sent to the waiting room to wait. Now I was really trying to stay calm and not panic, because we really didn't know what was going on yet. It's a good thing Aurora is so dang cute and such a good distraction sometimes. She has really helped us stay sane a lot over the last week.

The baby's right arm. I keep telling Aurora the baby is waving and saying "Hi, Aurora!" She loves it :)
After waiting for a bit, the tech came out and said my doctor did want to talk to us right away so we went upstairs to her office. We waited some more and then she came in. She said it was not good news. She confirmed what the radiologist said about the "thickening" and large body (although the baby is measuring right on schedule according to the head-to-rump measurement they took). She said those signs are indicative of a chromosomal abnormality and that our baby will most likely not survive. I broke down crying immediately when I heard that, and she teared up too. Dar was trying his best to keep it all together. A lot of what she told us after that is kind of a blur, but she said she wanted us to go see a specialist on Monday (which was this past Monday). She was extremely sorry to have to tell us that awful, unexpected news, and I feel bad for her that she has to give news like that to her patients sometimes. I seriously have the sweetest doctor ever. She cried with me when I had the miscarriage back in 2009, too. We love our doctor.

The rest of Friday was really hard for Darwin and me. We both cried a lot. We held each other, and we cried some more...trying to wrap our heads around this complete turn of events. We went to his parents house to talk to his dad and work in the garden to try to get our minds off things. My sweet in-laws took us to dinner to spend some time with us and to let us talk about things. It really helped. After dinner they came to our house and Dar's dad gave him a priesthood blessing, and then Dar gave me one too. We all cried together, but felt comfort and that the Lord is mindful of us.

Saturday we tried to keep ourselves busy by helping to clean our church, run some errands, and we took Aurora swimming for a bit too. Saturday night Darwin and I went to the temple. We REALLY needed it. Probably more than ever before, and we found the peace and comfort we were seeking. While we were there, Darwin and I both felt that even though our situation and the road ahead is going to be hard, the hardest thing we've ever done, that everything will turn out okay in the end. No matter what happens. We're so grateful for the peace and calm feelings we've had, even with the difficulty and weight of what we've learned over the past week.

On Monday we went to the hospital for another ultrasound and to talk to a specialist. He looked at the baby very thoroughly and in as much detail as possible with the baby still being so small. He said that the "thickening" the baby has is called cystic hygroma and extends along the baby's head, neck, and back.

The entire area to the right of the blue line is the baby's cystic hygroma
He also confirmed that the baby's chest and abdomen are larger than they should be, and also confirmed that these are both signs of a chromosomal abnormality. He said that because the baby is still so small it's hard to get a good look at the developing organs, but from what he could see during the ultrasound, he said our baby most likely has a heart defect also. He talked to us for a long time about the implications of what our baby has, and where to go from here. Because terminating the pregnancy is NOT an option for us, because of our own personal choice, we decided to wait a month to do further testing. Mid-April we'll go in for another ultrasound and amniocentesis to have genetic testing done on the baby's chromosomes to find out what kind of chromosomal abnormality our baby has. It will take 2-3 weeks for the results of the amniocentesis to come back. So right now we're just playing the waiting game and trying to live each day the best we can, and take things as they come.

One of the hardest things for me is knowing that we could lose the baby in the meantime. No matter what happens, the road ahead will be extremely difficult at times. We're just trying to hold on to our faith with as much strength as we can muster, and know that our Father in Heaven loves us, and I'm putting all my faith in being taught that He knows what's best for us and He also knows what we can handle. I sure hope and pray that we can handle this trial.

If this baby does survive, which we know is a possibility also, it may only live 1-2 weeks. We know that the baby will be born with birth defects and will go through this life with many handicaps. I just hope that if we are privileged to be the parents to this child for its lifetime, if it survives the pregnancy, that we can be the best parents we can be, that we will be able to give this child all the love and care it needs and deserves, and that our lives will be blessed from being able to raise such a special child of God.

Please, pray for us.

16 comments:

Louisa said...

Our prayers and thoughts will be with you. You two are such amazing people and I know that you will come out stronger! Lots of love from us!

Donna Moore said...

All our love thoughts and prayers and coming your way everyday xxxx

Miller Family said...

Oh I am so so sorry. I cried as I read your post imagining how difficult it would be to hear news like that. You have such a good attitude about what may come and I know you guys will make it through this difficult trial. You will definitely be in my prayers.

Sara Kappas said...

we are so sorry, our prayers are with your family at this difficult time. You two are amazing, strong, and so faithful to get to have one of Heavenly Father's choicest spirits.

Lora said...

Oh Kiara and Darwin I am beyond sorry. My heart is just aching for the both of you.
My water broke this last saturday and I delivered our baby early sunday morning here at the house. After lots of scary moments I delivered the rest at the hospital. We had a baby boy who we named Christopher Daniel (Mike's middle name, and after our best friend who just passed away) This week has been feeling very dark and difficult. We had made it to 17 weeks and thought all would be well. We were able to spend lots of time in the hospital holding him.
We are now starting to feel the light and warmth that comes from knowing that God is in charge. We are so blessed to have each other and our beautiful daughter to lighten days. The time we spent pregnant was so happy and wonderful and although I have been doing a lot of questioning, if I had to do it all over again I'd sign up in a moment.

I will be praying for you both with all of my heart. xo

Beverly L. Royer said...

What a rough time this is. I hope you can make it through. So hard.

Jennie-O said...

We will definitely be praying for you. All the best to you guys during this struggle. I'm so sorry :(

Cristin said...

There are no words. I am SO sorry. I'll be praying for you guys that you can get through this.

BusyMama said...

I couldn't help but get emotional while reading this. I know that this is part of Heavenly Father's plan for your sweet family. Difficult though it may be, take comfort in the fact that he trusts you with this large, frightening undertaking. And he won't make you do it alone, either. Prayers and hugs from Pennsylvania.

Rebekah said...

know I love you.

Denise said...

ara and Darwin, you both are wonderful parents and this new little one needed you and you needed them. No matter what happens,know that your Heavenly Father loves both of you and that you gave this little one just what it needed. Let me know if you need any help with Aurora, I will be happy to help you and if you need someone to cry on I am here for you. Thank goodness for Heather, she also cried when I had my 2nd miscarry and I had just met her! Love you both, you are great friends. Denise

Christy said...

i am so sorry to read this news on your blog. thank you for being an example of faith to all of us. i will be praying for you and your sweet baby. i wish there was something more i could do to help. XOXO

Kristie said...

You are in our prayers. My boss just found our their baby girl who is also due in september has downs and a cystic hygroma. After two weeks of waiting they found that the sack was shrinking and the baby would make it through. You are both amazing people and I know the Lord will bless you with the strength to endure this challenge.

Tricia said...

We will pray for you and Darwin.

Shaylee said...

So sorry to hear this. Our thoughts and prayers are with you!

Erin & Ethan said...

So sorry to hear this news! We believe in miracles & will pray for you & your sweet little one.